Walking with McArdle disease: alienation and solidarity in a rare disease journey

Edmund Jessop


Narrative reveals what the author wants to share with the reader. I present an analysis of a literal, physical journey made by a rare disease patient – a trek across Wales. Prominent themes include the alienation of having a rare disease, but also a strong sense of companionship in the journey, and the normal pleasures and tribulations of walking the British countryside.


McArdle disease; Narrative medicine; Social alienation; Friends

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