Grady, Christine, National Institutes of Health, United States
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Vol 1, No 2 (2014) - Rare diseases policy
Informed consent template for patient participation in rare disease registries linked to biorepositories
Abstract PDF
The Rare Diseases and Orphan Drugs Journal has received funding from the European Union Seventh Framework Programme (FP7/2007-2013) under Grant Agreement № 305690: RARE-Bestpractices project: www.rarebestpractices.eu. Sole responsibility lies with the authors and the European Comission is not responsible for any use that may be made of the information contained therein.