van der Stel, Rob, Stichting Terre, Dutch Rett Syndrome Foundation, Leidschendam, Netherlands
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Vol 2, No 2 (2015) - Rare diseases policy
Rett Syndrome and the Role of National Parent Associations within a European Context
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The Rare Diseases and Orphan Drugs Journal has received funding from the European Union Seventh Framework Programme (FP7/2007-2013) under Grant Agreement № 305690: RARE-Bestpractices project: www.rarebestpractices.eu. Sole responsibility lies with the authors and the European Comission is not responsible for any use that may be made of the information contained therein.
