van Karnebeek, Clara, Centre for Molecular Medicine and Therapeutics and Division of Biochemical Diseases, Department of Pediatrics, BC Children’s Hospital, Child & Family Research Institute, University of British Columbia, Canada

• Vol 1, No 2 (2014) - Rare diseases policy
  Bone marrow transplant for a boy with alpha-mannosidosis illustrates a family’s decision-making in rare diseases
  Abstract  PDF