Consortium, RARE-Bestpractices
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Vol 1, No 1 (2014) - Guidelines, systematic reviews, health technology assessment, and horizon scanning
Methodology for production of best practice guidelines for rare diseases
Abstract PDF -
Vol 1, No 1 (2014) - Guidelines, systematic reviews, health technology assessment, and horizon scanning
RARE-Bestpractices: a platform for sharing best practices for the management of rare diseases
Abstract PDF